UK Infantile Spasms Trust
The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare seizure disorder infantile spasms, also known as West syndrome. The charity offers a lifeline to anxious parents via its online community, and works alongside medical professionals to raise awareness of this little known condition, which can be very difficult to recognise – but potent
About UK Infantile Spasms Trust
The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare seizure disorder infantile spasms, also known as West syndrome. The charity offers a lifeline to anxious parents via its online community, and works alongside medical professionals to raise awareness of this little known condition, which can be very difficult to recognise – but potentially very damaging if left untreated.
Your Impact
UKIST serves an online community of over 2000 families affected by infantile spasms. We aim to support them throughout their journey - as parents concerned about their child pre-diagnosis, throughout the treatment process and through any long term impacts.
£10
Pays for us to courier one of our supportive seats to a family
£70
Pays for an hour of private physiotherapy
£500
The average cost of our grants for special needs equipment
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UK Infantile Spasms Trust
The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare seizure …
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