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Tourettes Action

Tourettes Action works in England, Wales and Northern Ireland and is the leading support and research charity for people with Tourette Syndrome and their families. We want people with TS to receive the practical support and social acceptance they need to help them live their lives to the full.

About Tourettes Action


Tourettes Action is the UK’s only national charity dedicated to supporting individuals with Tourette syndrome and their families. Our staff, volunteers and supporters are engaged and energised in driving forward our mission. Everything we do is grounded in our community’s needs and informed by both the voices of our community and research-based evidence.

Our Vision
We want a world where people with Tourette syndrome are: accepted, supported and embraced. This is a world which enables people with the condition to reach their full potential.

Our Mission
We will support and empower people living with Tourette syndrome, and their loved ones, through comprehensive advice and support.
We will campaign to improve services, raise awareness and understanding of Tourette syndrome, and work to eliminate the stigma surrounding it.
We will assist and promote essential research into Tourette syndrome.

Together, we can make a difference

Your Impact

Our Goals
Our goals are grounded in our community’s needs and informed by their voices.

1. To enable people with Tourette syndrome to thrive: Provide accessible support, advice and training, to individuals and their families, and professionals, helping people living with the condition to flourish at home, in education and in employment.

2. To raise awareness of Tourette syndrome and reduce the stigma associated with it: Increase public awareness and understanding about the reality of Tourette syndrome, and what it means to live with it.

3. To reduce health inequalities for people living with Tourette syndrome: Campaign so that everyone with Tourette syndrome can have access to an appropriate NHS healthcare provision, regardless of their location, ethical or cultural background or social status.

4. To ensure that no-one with Tourette syndrome feels alone: Build a network of support for people with Tourette syndrome and their families, ensuring that no one living with, or affected by the condition, feels alone.

5. To support research into Tourette syndrome: Informed by the views of our community, we will assist and promote research that examines the causes, the treatments, and the impact of Tourette syndrome, with a view to improving the lives of people with the condition.

6. Prudent financial and risk management: We seek to preserve and enhance the strength of the charity, safeguard our people, our community and the enduring reputation of the charity.

£10

provides an information pack for someone newly diagnosed with TS

£100

covers the costs of support group meetings

£250

enables us to plan and deliver webinars for parents, children, adults, and professionals

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Tourettes Action

Tourettes Action

Tourettes Action works in England, Wales and Northern Ireland and is the leading support and research charity for people with …

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