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Marfan Trust

The Marfan Trust is the only charity in the United Kingdom dedicated to improving and saving the lives of people with Marfan and Loeys-Dietz syndromes. We provide personalised advice through our helpline, create educational material on-and off-line, and conduct research into improved treatment for the conditions.

About Marfan Trust


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Marfan Trust

Marfan Trust

The Marfan Trust is the only charity in the United Kingdom dedicated to improving and saving the lives of people …

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