Genetic Alliance UK Ltd Logo

Genetic Alliance UK Ltd

Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our mission is to advocate for fast and accurate diagnosis, good quality care and access to the best treatments for those in the genetic, rare and undiagnosed communities.

About Genetic Alliance UK Ltd


Tags: Rare diseases Health & Medical Advocacy, awareness & campaigning

Genetic Alliance UK is a small and impactful charity with a mighty mission. We work tirelessly with our member organisations to improve the lives of the 3.5 million people in the UK with a rare, genetic or undiagnosed condition.

Genetic Alliance UK member organisations provide just 5% of our income. We rely on charitable donations and grants from many areas to continue our vital work – including from kind individuals like you.

Your donation helps us:

Provide unwavering support to our membership – over 230 charities and patient groups – in everything that they do;
Campaign for and champion the rights and needs of people affected by rare, genetic and undiagnosed conditions through our Rare Disease UK campaign;
Publish transformative reports and recommendations that result in real change – including timely diagnosis and high quality care coordination;
Be here for the SWAN UK community, the only dedicated family support network for children with undiagnosed genetic conditions.

Please email [email protected] if you would like your fundraising or donation to solely support the Rare Disease UK campaign or the SWAN UK community.

Your Impact

By donating to Genetic Alliance UK, you are supporting the 1 in 17 people with a genetic, rare and/or undiagnosed condition in the UK. You will be empowering individuals through much-needed by providing funding for advocacy, research, accessible information and resources - helping create equitable healthcare services and make a long-term impact in the field of genetic and rare conditions. You will also be directly supporting over 3,900 SWAN UK community members who have a child or children with a genetic condition so rare it cannot yet be diagnosed.

£10

will help support our research and policy work

£30

will help us create and send resources to 10 families going through genetic testing

£50

will pay for an online disco for 40 of our SWAN UK families