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FOP Friends

FOP Friends is an organization dedicated to raising funds and awareness for Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic condition. They provide support, drive research, and offer resources to individuals and families affected by FOP. FOP Friends aims to improve the lives of those with FOP by working towards treatments and ultimately, a cure.

About FOP Friends

Charity ID: 1147704
Charity Category:  Health & Disability Website:  http://www.fopfriends.com

Rare diseases Health & Medical Advocacy, awareness & campaigning
FOP Friends is a UK-based charity dedicated to supporting research into Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic condition causing bone to form in muscles, tendons, and ligaments. The charity raises funds to drive research aimed at finding effective treatments and a cure for FOP. They also work to increase awareness of the condition among the medical community and the public, and provide support to families affected by FOP.

Your Impact

FOP Friends has made a significant impact over the past 14 years by providing crucial support, raising vital funds for research into Fibrodysplasia Ossificans Progressiva (FOP), and fostering a strong sense of community for individuals and families affected by this ultra-rare condition. Their dedication has increased awareness, connected families with invaluable peer support, and contributed to the ongoing efforts to understand and ultimately find treatments for FOP.
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FOP Friends

FOP Friends

FOP Friends is an organization dedicated to raising funds and awareness for Fibrodysplasia Ossificans Progressiva (FOP), a rare genetic condition. …

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