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Down Syndrome UK

Down Syndrome UK works to improve the lives of people with Down syndrome, and their families. We primarily work in maternity care and early years, providing resources, training and support to parents and professionals to empower those with Down syndrome to thrive and flourish.

About Down Syndrome UK

Charity ID: 1184564
Charity Category:  Community Website:  http://www.downsyndromeuk.co.uk

Disability support Child healthcare Special educational needs (SEN) & neurodiversity Learning disabilities Health & Medical Neurodiversity Children & Education
Down Syndrome UK is a parent-led charity working hard to challenge outdated stereotypes and raise expectations for individuals with Down syndrome. What sets us apart is our comprehensive training and resources for both parents and professionals, expertly crafted by those with lived experience of Down syndrome. We ensure children with Down syndrome have the best developmental opportunities by equipping the people who support them - from families to educators and healthcare professionals - with evidence-based knowledge and practical strategies, enabling every child to flourish and reach their full potential.

Your Impact

Down Syndrome UK's work reached families and professionals right across the UK. In our last financial year, we supported 104 expectant parents, 877 new parents and over 3,000 parents of preschool and primary-aged children with Down syndrome, while welcoming 69 babies through our pregnancy group. Our Pants4School toilet training programme reached 5,165 families and professionals, and we trained 1,911 healthcare professionals through 89 events. In our latest parent survey, 84% told us they now have a better understanding of Down syndrome, and 76% feel more positive about their child's future. None of this would be possible without our community, whose generosity helped us raise £454,578 this year to continue this work.
£10

Contributes to our advocacy work — helping us push for earlier, fairer access to support so children with Down syndrome are not left waiting for the help they need.

£20

Helps fund a place for a parent at one of our online sessions — giving them practical knowledge and a community of people who understand what they're going through.

£30

Supports training for a teacher, SENCo, or health professional — so the people working with children with Down syndrome have the knowledge to make a real difference.

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Down Syndrome UK

Down Syndrome UK

Down Syndrome UK works to improve the lives of people with Down syndrome, and their families. We primarily work in …

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