Mar 28, 2025 - Nov 30, 2025
My Brain Tumour Battle: A Journey of Hope and Determination
6064
Israr Jan-Parker
MY BRAIN TUMOUR BATTLE: A JOURNEY OF HOPE AND DETERMINATION
MY STORY
Over two years ago I was diagnosed with a Petroclival Meningioma - a rare complex brain tumour that sits at the base of the skull, perilously close to critical structures like the brain stem, cranial nerves, and major blood vessels. Only 2% of brain tumours are of this type.
DEFYING THE ODDS
Despite the immense challenge of this diagnosis and having the ultimatum of having 7 months to live due to the tumour growing so fast - I was determined to fight. The 16 hour operation to remove the majority of the tumour was a miracle in itself, thanks to the skilled team of surgeons and nurses at Southampton General Hospital. However, the recovery process has been long and arduous, as I've grappled with impaired vision, tinnitus, chronic fatigue, nausea, and severe headaches.
A MISSION OF HOPE AND AWARENESS
Yet, I refuse to let this brain tumour define me. If anything, it has galvanized my resolve to raise awareness and funds for vital research and support. Statistics show that brain tumours kill more children and adults under 40 than any other cancer (Brain Tumour Research) and over 12,000 people will hear the words “YOU HAVE A BRAIN TUMOUR” in 2025 (The Brain Tumour Charity) - a devastating reality that demands our attention and action.
Further more, fewer than 20% of those diagnosed survive beyond five years, compared to an average of 50% across other cancers. This is simply unacceptable.
TAKING ON PHYSICAL CHALLENGES FOR CHANGE
That is why this year, although I am still living with some brain tumour, I am taking on a series of personally daunting physical challenges to push the boundaries of what's possible and raise critical funds for The Brain Tumour Charity and Brain Tumour Research. From trekking 100 miles across the South Downs, to scaling the iconic O2 in London, to swimming 750m in an outdoor river in Bedford , as well as undertaking the Yorkshire 3 Peaks challenge - I am determined to celebrate my own hard won progress while also inspiring others to join the fight.
FUELLED BY YOUR LOVE AND SUPPORT
Each step, each summit, each stroke in the water will be fuelled by the love and support of my family, friends, and all those in the brain tumour community who have rallied around me. Your encouragement and generosity have been a constant source of strength, proof that we are in this battle together.
This year I am really pushing my limits with over neuro stimulation and have signed up for:
APRIL
- 100 miles South Downs walk in April
- Yorkshire 3 Peaks Challenge - My husband will be joining in on this challenge of 24 miles over 5000ft in 12 hours. On 19th April
MAY
- Box End 750m Swim 31st May in Bedford. A nice mix of endurance and technique Open Water swimming is always exhilarating!
JUNE
- Climb the O2 London in June. A fun and slightly different adventure. Something to look forward to.
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This wasn’t just a walk. It was a declaration: WHERE YOU LIVE SHOULD NEVER DETERMINE THE CARE YOU RECEIVE. Thank you. Thank you, thank you for everyone’s kind donations 🫶🏼🫶🏼🫶🏼
0 likesA week, post 100 mile South Downs Walk Challenge: "What people saw: the smiles, the finish line, the victory. What they didn't see: * Me limping in pain before sunrise. * The horrible cut on hand from falling and managing blisters. * The night I cried from exhaustion. The last 30 miles were beautiful and sunny but the howling wind impacted on my balance with over neurostimulation. * The way my mind tried to convince me to quit, over and over. * The moments I felt totally alone. But here's the truth: every one of those hidden moments mattered. Because they made the finish post in Eastbourne real. You don't need to be superhuman to do something incredible. You just need to be willing to feel everything and still keep going. Help me get to another milestone of my fundraising to give hope to all Brain Tumour victims, so they too can still keep going…🙏
0 likesHuge thanks to my husband and rambling friends for helping me train for this challenge and my wonderful friends from over 26 years for actually doing the last leg to Eastbourne with me! Massive thanks to everyone who has donated so generously to the Brain Tumour Charities. Your kindness will be playing a part in saving lives 🫶🏼
0 likesHuge thanks again to staff and students for supporting Wear a Hat Day (an annual event organised nationally by Brain Tumour Research Charity). We raised lots of awareness and donations through cake sale :) As you can see in the pic, Lincoln the dog and Baby Ella completely stole the show - so adorable
0 likesBig thanks to amazing colleagues and students at Chichester University who powered through a fantastic circuit class! Yes I ached the next day! :)
0 likesA heartfelt thank you to Brain Tumour Research and their incredible volunteers. When pain and doubt overwhelmed me during my 106km Isle of Wight challenge last year, their support and cause kept me going. Now, I’m honoured to pay that kindness forward by volunteering and supporting others on their journeys. 💛 Together, we’re stronger! My fuel for hope, resilience, and breakthroughs. 🫶🏼🫶🏼🫶🏼
0 likesPre-dawn stillness in the woods was beautiful today. Fuellled up for my first Ramadan fast, then achieved a 5 mile sunrise speed walk—legs strong, spirit bright. This month, evenings will shift to strength training after iftar! (Breaking fast) Grateful for the energy to push limits, physically and spiritually. Bonus: March is #BrainTumourAwarenessMonth—here’s to resilience, hope, and the power of community. #RamadanReady #StrengthInPurpose
0 likesSome days, the sofa screams louder than the trail… But today, I dragged myself out into the mud anyway. This photo? Pure proof that training for the South Downs 100 mile walk isn’t glamorous—just gritty, muddy, but I’m soaked in determination.
0 likesRise from the challenge, rebuild from the setback…progress is your rhythm… Powered through a very muddy, misty yet beautiful 11 mile training walk towards the 100 mile South Downs walk in April. Need to sort out the Plantar Fasciitis!! Any tips, please DM! :)
0 likesLast year the 100 mile ultra challenge around the Isle of Wight was tough. I’ve added some studio neuro strengthening exercises to help me cope with my first 2025 challenge - 100 mile South Downs Walk in April💪 I’m also celebrating as it is now 4 weeks since I have stopped being physically sick when I do the bunny jumps! I can now do 30 in a row! This exercise is an advance neuro stimulation exercise, helping to engage different parts of the brain and potentially aiding in cognitive rehabilitation! I do feel very dizzy afterwards but that will improve with continuous practice 🤞🏼💪
0 likesSmashed a 12 mile training walk around Winchester this morning. It was cold, raining, windy and very slippery. Had a muddy fall but I’m so motivated to be raising awareness and funds for Brain Tumour Research and Brain Tumour Charity. My motto today is: Rain or Sunshine, ELEVATE! #braintumour
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