Sky Dive for Megan

Aug 25, 2024

Sky Dive for Megan

On the 9 August, Landmarc directors are skydiving to raise money for a range of charities who supported the family of the company's Operations Director, Matt Hughes, when his daughter was diagnosed with Aplastic Anaemia.

Aplastic Anaemia is a rare and serious disease in which the bone marrow does not produce an adequate number of new blood cells. This causes tiredness, shortness of breath, rapid heart rate, unexplained bruising, nose bleeds, headache and fever and if left untreated, can be life threatening.

Matt says, “Shortly after Megan’s 10th birthday, late September last year, we noticed bruising on her legs. Assuming this was normal rough and tumble at school, we thought nothing of it, however the bruises kept appearing and within two days were all over her body. After a trip to the specialist and weeks of exhaustive testing, she was finally diagnosed with Aplastic Anaemia.

“It was a devastating diagnosis, and there was no treatment available which could reverse the failed bone marrow. Her only option was a full bone marrow transplant. Megan endured weekly blood and platelet transfusions while we waited for a suitable donor match, with the situation becoming increasingly desperate.

“Just before Christmas, we were given a glimmer of hope when a donor was identified in Germany and a recovery pathway finally became available. It still wasn’t easy, as the availability of Bone Marrow Transport (BMT) wards is very low, so we had to wait our turn. It meant long spells in hospital, including over Christmas and a blue light emergency ambulance trip in January. By this point our little girl was very ill.

“On 25 February Megan was finally admitted into the BMT ward at Bristol Children's Hospital for an intensive nine days of chemotherapy to prepare her body for the BMT process. On 5 March the stem cells arrived, D Day was finally upon us, and the BMT took place over two days. A long recovery period was, and still is, ahead of us. She remained in the isolation ward for five weeks, followed by a further six weeks in the family isolation accommodation ‘Sam's House’. Then, we were finally allowed to bring our little girl home. She's got a long way to go and will need to isolate at home for the next nine to ten months but she's home; we couldn't ask for more.”

Jo Potts, Finance Director and organiser of the sky dive adds, “As a team, we wanted to do something to help Matt, so we came up with the idea of doing a sky dive to raise money for the many charities who have supported Matt and his family throughout Megan’s treatment. On the 9 August, we will be heading to Netheravon Air Field to do the jump and hope to raise as much money as we can.”

Supporting

Young Lives vs Cancer Logo
Young Lives vs Cancer

Children | 1107328

20%

At Young Lives vs Cancer, we help families find the strength to face everything cancer throws at them. We know everyone's different, so we work hard to provide support that’s easy to access and meets individual needs.

Rainbow Trust Children's Charity Logo
Rainbow Trust Children's Charity

Children | 1070532

10%

We are the leading organisation providing emotional and practical support to families who have a child with a life threatening or terminal illness.

The Aplastic Anaemia Trust Logo
The Aplastic Anaemia Trust

Health | 1107539

15%

Aplastic Anaemia is a rare life-threatening auto-immune disease that stops the bone marrow from producing blood. The Aplastic Anaemia Trust is the only charity in the UK focused on aplastic anaemia. We fund research to improve treatment, provide expert information, and work tirelessly, at grassroots level, to support every aplastic anaemia patient and their loved ones.

The Grand Appeal Logo
The Grand Appeal

Children | 1043603

15%

We support Bristol Children's Hospital to save lives & support sick children.

Hannah's Appeal Logo
Hannah's Appeal

Children | 1124750

10%

We support children’s Oncology wards. Referrals of children with cancer and life limiting illnesses are reviewed by our team. The family can then enjoy a FREE quality fun break away at one of our luxurious holiday homes.

Brighter Futures GWH Logo
Brighter Futures GWH

Health | 1050892

15%

Brighter Futures is the charity for Great Western Hospitals NHS Foundation Trust. With your help we can fund that extra special level of care in order to make a real difference to patients, their families and our staff who treat them. We improve the hospital environment, fund ground breaking research, support the development and training of hospital staff and provide state-of-the-art equipment.

Molly Olly's Wishes Logo
Molly Olly's Wishes

Children | 1145312

15%

Our aim is to provide support to children suffering from life-threatening illnesses and their families in the UK. In an unimaginably difficult situation, we hope to make the dark days a little brighter.

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Charities Supporting

Young Lives vs Cancer

20%

Rainbow Trust Children's Charity

10%

The Aplastic Anaemia Trust

15%

The Grand Appeal

15%

Hannah's Appeal

10%

Brighter Futures GWH

15%

Molly Olly's Wishes

15%