Lobular Breast Cancer UK
Lobular Breast Cancer UK Logo

At LBCUK we work to save more lives by unlocking the challenge that is lobular breast cancer. Working together we can all live well.

Lobular Breast Cancer UK

At Lobular Breast Cancer UK we work to ensure that anyone diagnosed with lobular breast cancer lives, and lives well.

As people diagnosed with lobular breast cancer, we all have a different story to tell. Hear some shared personal experiences of living with a lobular breast cancer diagnosis.

But we don’t work in isolation at LBCUK. Only by working together can we make real changes and we are joined by our medical and scientific advisors, family and friends who support us and all of our volunteers.

Following a diagnosis of Lobular Carcinoma in Situ (LCIS), a risk marker for breast cancer, in 2014 and invasive lobular breast cancer in 2017, Claire Turner, our Founder and Chair, couldn’t find any information about lobular breast cancer in the UK and there seemed to be little understanding of the disease.

She approached Lobular Breast Cancer Alliance in America for information and began sharing the knowledge she found with patients in the UK. After speaking with researchers and clinicians also interested in lobular breast cancer, she realised that there was a need for an organisation to drive work for a change in understanding, methods of detecting lobular tumours and better specific treatments.
Knowing that more can be achieved from working together, in 2019 Claire put a call out on social media for other people who were interested in creating this change and Lobular Breast Cancer UK began.

Your Impact

Our Goals:

Advance education and understanding of lobular breast cancer by providing information for the public, clinicians, researchers, relevant charities and the media.

Support people to become their own best advocate and get involved as patient advocates in research and campaigning.

Ensure lobular specific support routes are available to anyone facing a lobular breast cancer diagnosis.

Change UK wide policy and treatment guidelines that recognise lobular as a distinct disease.

Work with researchers and clinicians to ensure that research conducted for lobular breast cancer meets the needs of patients.

Raise funds for research into lobular breast cancer.