Ride For Rare

Sep 15, 2024

Ride For Rare

Ride For Rare

UK Genetic Services

In 2013, genetic professionals involved in the Deciphering Developmental Disorders Study took part in a charity bike ride between nearby genetic services, to raise money for SWAN UK and Unique charities.

The event was a great success, raising over £11,000, and so we are doing it again! The rides will take place on Sunday 15th September 2024. It is hoped this will be a worthwhile challenge which will help build relationships between genetic professionals, raise money for rare genetic conditions and be fun!

The money raised will be equally split between two fantastic charities, SWAN UK (run by Genetic Alliance UK) and Unique. These two charities support individuals and families with rare genetic conditions. Click on their logos to read more about what they do.

If you are from a UK Genetics Service and would like to take part in the bike ride, please email claire.cocks@geneticalliance.org.uk.

Supporting

Genetic Alliance UK Ltd Logo
Genetic Alliance UK Ltd

Health | 1114195

50%

Genetic Alliance UK is the largest alliance of organisations supporting people with genetic, rare and undiagnosed conditions in the UK. Our mission is to advocate for fast and accurate diagnosis, good quality care and access to the best treatments for those in the genetic, rare and undiagnosed communities.

Unique Rare Chromosome Disorder Support Group Logo
Unique Rare Chromosome Disorder Support Group

Health | 1110661

50%

Unique provides much needed help and information to those caring for a family member with a rare chromosome or single gene disorder. These are lifelong conditions affecting at least 1 in 200 babies, causing disability and medical issues. For more information see www.rarechromo.org

Supporters 535

£11,106.32

+ £2,207.21 Gift Aid

535 supporters

£0.00

 Offline donations

Charities Supporting

Genetic Alliance UK Ltd

50%
Unique Rare Chromosome Disorder Support Group

50%